Look how far we've come!

Thursday, February 04, 2010

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The other day I was looking back through my blog archives about Luke's handwriting and the special paper we've used. I came across the photo I shared back in February of 2009 of Luke's handwriting.

At that time, Luke had been diagnosed with ADHD and his handwriting deficiency was noted in a clinical setting but we still hadn't received any sort of help for the problem. We were appealing the special education inclusion denial.

Take a look at his handwriting today, one year later.

It is a remarkable difference. What's happened in the last year to see such improvement? Lots of things (and not nearly enough, but I'll get to that in a moment).

Shortly after the first writing sample, back in Spring 2009, Luke was denied special education for good. I was told he was too intelligent so he didn't meet the qualifications. (I have a little friend, a friend of my daughter's really, who has Fetal Alcohol Syndrome, ADHD, and more challenges. She scored a 72 on the WISC intelligence test, just 3 meager points above "Intellectually Deficient" and she was also denied special education in the same school. WHAT?!! I always thought special education was to HELP kids who struggle in school. She struggles so immensely it hurts my heart. But that's a topic for a different post.)

So we were denied special education which meant no help for Luke's handwriting at school. Again, my brain is screaming, "WHAT?!!" A child is struggling with a skill taught in school and the school says they can't help him because it's not causing him to fail and he's not "Intellectually Deficient" which has nothing to do with handwriting anyway. I am trying so hard not to get wound up revisiting the subject.

The school occupational therapist was allowed to consult on the 504 Plan accommodations meeting and make suggestions for myself and the classroom teacher. She suggested pencil grips and specialized paper. He was also given an official accommodation hat he can read back the letters on his spelling test if they aren't legible or questionable. You'll see that in the first photo where he wrote find "finb" because he often writes letters backward. He was able to tell her the correct spelling and she was able to give him credit for it because of this accommodation.) The school wouldn't allow the Handwriting Without Tears program, even though the school board's head of special ed in our district suggested it, because they didn't have the money to purchase it (they had just given teachers in NC a blanket pay cut and were about to lay off 5-7 in our school alone).

So a couple suggestions were made and he was thrown back to the classroom teacher who had Luke and 24 other kids to educate. She really did her best to help him but he needed the skill sets of an occupational therapist to tackle this issue.


So, in June 2009, despite not having the funds for it, I found an occupational therapist that accepted our health insurance and would be covered under a specialist copay. Sounds great that it was covered, right? Not really. I was essentially out of work because the real estate market was in crisis and I hadn't had any income for nearly 6 months at that point. $200 a month for OT was not feasible. So I worked out a plan with the OT folks that he would come every other week and I could pay be credit card. It is my strict personal policy not to carry a balance on a credit card since getting into deep financial poo with credit cards in college. But here I was making a special circumstance and going against my own rule and going into debt so I could get my son the help he needed and deserved when the school wouldn't provide it. He immediately started the Handwriting Without Tears program. As well, this therapist worked with different pencil grips and papers to try to find the combination that works best for him.

He did Handwriting Without Tears twice a month for about 5 months. When we reached a plateau with improvement, I asked that they scale back on the handwriting and work with him on sensory issues, being in control of his body, stopping and thinking before acting, etc. The handwriting had improved but you had to be me or his teacher to decipher it, and many times even we couldn't still. The school purchased the raised line paper the occupational therapist had suggested but it didn't help. He just went right over the bump to go beyond the line. I was out of ideas.

This past fall, in 2nd grade, he began refusing to use pencil grips and special paper, etc. He is extremely sensitive to being different from his peers and these things made him different. That was certainly a setback. By happenstance one day, I spotted some new paper from Mead for helping small children learn handwriting -- I found it in the craft store of all places. It was paper with 3-sided boxes for each letter and stop and go lines on the left and right for the margins. Luke's handwriting changed immediately using this paper. He had to slow down and concentrate to get a letter in each box and his writing became mostly legible. However, he still refused to use that paper at school, where he needs it most. We use it at home for spelling practice and homework though and it is wonderful (as you can see in the 2nd photo above).

Medication has also helped immensely, when it is working. We have been through constant medication trials over the last year and finally seem to have landed on a combo that is going to work for Luke. Since starting these last meds, his handwriting is the best it's been. You see, the trick for Luke is to slow down. When the medication is helping him take his time and the format of the paper is forcing him to slow down, his writing is astoundingly improved.

Now if I can just figure out how to get him to use that paper at school, we'll be doing great! I think it's that the stop and go signs are feeling babyish to him. I have not seen this paper in a more mature form anywhere though. Maybe I can white out the stop and go on all the pages? Hmmm...

One more bit of "look how far we've come" news: Luke is receiving an award for academic growth at school again this year. I am so thankful he has had teachers that recognize his accomplishments despite his struggles. I can't wait to go to the ceremony Wednesday. I'll be sure to share photos next week.

Way to go Luke!

A Mom's View of ADHD

consistency is key for homework

Wednesday, January 27, 2010

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I had a comment on my last blog post from another mom of a 7-year-old ADHD boy asking how I get Luke to do homework. I thought it made a great subject for a blog post.

There are some general ground rules that should always be followed:
  1. TV and other distractions must be turned off (music in the background actually helps some children drown out their surroundings and focus -- it is a distraction for me and Luke but my daughter does homework better with music on)
  2. Have a dedicated spot for homework and work there each day, consistency is key for our ADHD kinds.
  3. Praise and reward often (typically more often than you are comfortable with)
For us, we played around with time of day this year and created a consistent schedule. I first tried homework right after school thinking meds would still be working and we should just get it over with. That was a disaster. They need time to unwind and do whatever their hearts desire after being in school 7 or 8 hours on someone else's time. My kids usually watch TV or play video or computer games and eat a snack right after school.

We also tried after dinner when school was a distant memory. That wasn't a battle to get Luke to agree to do homework like immediately after school was. However, his medication was no longer helping him slow down and it was a battle to actually get anything accomplished.

4 pm turned out to be our "magic" homework hour. Now, I use the term "magic" very, very loosely. Our ADHD children will never be willing to do homework, nor will they be efficient at it. It's finding what works best under their circumstances that will be magic for them and your family. It may not be magic for a typically-abled child, but it's magic for us.

So, at 4 pm we turn off all electronics and sit down at the dining room table (it could be on the floor or in a bean bag chair -- anywhere you child is comfortable and can write). We have a busy schedule these days so we may get to it at 3:30 pm if we are going to have to head out the door around 4 pm or we may get to it directly after we come home from an activity if home after 4 pm. Some days, we are too busy and skip it altogether. Luke's teacher believes that evenings are family time and shouldn't be filled with the stress and time consumption of homework. Her expectation is that they learn their spelling words by Friday morning and do some reading. I have found, since Luke has such a phenomenal memory, we can get away with doing spelling 2 or 3 nights a week instead of 4 nights. Plus, their school day is 50% reading so I don't force him to read with me for homework. He has a flashlight in bed and reads to himself a few nights a week before falling asleep. Sometimes he'll come to me with a particular book and ask me to read to him. I know the homework requirements are going to greatly increase when he gets to 3rd grade next year so we'll wait until then to be so stressed out every evening.

It's 4 pm and we're at the dining room table ready to work on spelling words. Luke uses special paper from Mead with boxes for each letter, it's called RediSpace Transitional Notebook. He refuses to use this different paper at school in front of his peers but he will use it at home with me. It makes an astonishing difference in the legibility of his handwriting because he is forced to slow down tremendously to put each letter in its own box. I let Luke pick out whatever pencil he wants to use. It can be a colored pencil or a mechanical pencil or even an ink pen on occasion since he doesn't turn in his spelling practice. He has learned that an ink pen can be frustrating though since he can't correct his mistakes and rarely chooses an ink pen anymore. His occupational therapist recently suggested we use golf pencils. So we have sharpened some of our regular pencils down real short. It has helped with his handwriting believe it or not. We are meaning to go and purchase a box of golf pencils but haven't stopped by the golf shop yet.


Now it's 4:05 pm, maybe 4:10 pm and Luke has the pencil of his choice and his special paper and is still grumbling about doing homework, "I don't want to do spelling." Even the best laid plan will not cure the resistance to homework. I hope that when he's older he'll have the compensation mechanisms to know it's hard but it has to be done and just do it. For now, I've come to grips with the fact that he will complain about doing homework. However, we have reached a point where the complaining is just the first few minutes. Once he realizes he can do something successfully and receive praise for it, he stops complaining. The resistance is born out of low self-confidence too, not just the fact that they see homework as WORK.

Now, speaking of praise, this is crucial and to be included in ground rules. You must praise them over and over for every little accomplishment in their homework (if you are with them through homework). For instance, I quiz Luke on his spelling words each night we do homework. I quiz him only on the words he missed the day before. That means spelling homework gets shorter and shorter each night, benefit #1. I used to have him write them all and then "grade" them after and go over the ones he missed with tips and tricks to help him remember them. Now, I watch him spell them and praise and make a huge deal every time he gets one right. He is excited to move on to the next word when he just nailed one, benefit #2! And then we still review how to remember the spelling of the ones he missed and he writes each one correctly one time. Yes, he wants to quit each time he misspells one, but at least it's not every moment of the entire task this way. I was drawing smiley faces next to correct words and now he has taken that over; it adds time to the homework but it gives him ownership and is totally worth it.

It is now part of Luke's 504 Plan that he be able to complete incomplete classwork at home. So once or twice a week we have a writing assignment or a math worksheet in addition to the spelling. Math is never a problem. It is his talent. He loves to do the math because it makes him feel capable. The writing can be a challenge, it is his biggest struggle. I try to save the writing for an afternoon when homework is going well and his demeanor is good or for the weekend when there's no other "work" except that.

That's it. It's really nothing magic or out of the ordinary. Through trial and error we have found what works for us and our situation with this particular teacher. Next school year we will go through the same trial and error.

I've read many times a suggestion to have a "homework toolbox" (I first read this in a blog post from my fellow ADHD mom and virtual friend Shane in her article
Helping Your LD Child Conquer Homework). The toolkit will be some sort of box or desktop organizer, even an actual toolbox, with every single thing necessary to complete homework, prepped and ready to go:
  • pencils (sharpened -- sharpening pencils is a favorite procrastination technique of children),
  • pencil sharpener,
  • pencil grips (if used),
  • markers,
  • colored pencils (sharpened),
  • kid scissors,
  • notebook paper,
  • construction paper or blank copy paper,
  • calculator,
  • ruler,
  • dictionary,
  • index cards,
  • highlighter,
  • tape,
  • glue stick,
  • post-it notes,
  • clip board (if not working at a table or desktop),
  • anything else your child may use for homework
Last year we used dried pasta to help with math and our baggie of math macaroni would have been in there too. This is on my list of things to create and implement in our home.

Also, get creative and make homework visual if you can. This comes back to the math macaroni. It was a suggestion from the teacher and it went so well we used it often. He liked to spell words with uncooked spaghetti mixed with elbow macaroni for curves last year too (when the spelling words were 3 or 4 letters). Does your child love to paint? Let them paint their spelling words or their illustration for their writing assignments. Painting letters is actually a common therapy tool for children that struggle with hand writing. What about playdough? I just purchased a box of 101 cookie cutters at Target for $10 and it has lots of letters and numbers. You could get a complete alphabet and number cookie cutter set and do spelling and math this way.


A timer (there are many specifically for ADHD and special needs) is a great tool for completing a task too. ADHDers often struggle with the concept of time. Luke is constantly asking me "how much longer?" when doing something he'd rather not be doing or when anticipating an activity or play date. He actually has a small digital kitchen timer on his desk at school that the teacher sets for him as a countdown to the end of a work task. If he is given a math worksheet and he has 15 minutes to complete it, she sets the timer for 15 minutes. At any given moment, he can look at the timer and know how much time he has left to finish. I sometimes set the timer on the stove for homework (and getting dressed in the morning or minutes until his turn on the computer is over, etc). The timer is a really great tool. I have considered the special needs watches that can be set with several different alarms and written reminders but haven't felt Luke is ready to care for and keep up with such an expensive watch yet ($70-80). I do feel we will have something like that in the future.

There is so much more than the few ideas I've covered here, especially for older children. Take a look at these other resources on the subject of homework with ADHD children:
  • In researching links for more information on this topic, I came across a fantastic web site, Family Education, full of amazing homework tips, tricks, helps, templates, checklists, and how to's. They also talk about nutrition, sports, social aspects, etc. This is my newest bookmark and the best go-to site on getting a handle on homework, teaching study habits, and educating our children in general. Here's the Family Education homework section. They even have a section on ADHD. What a great find!
Leave a comment and let us know what works for you and your ADHD child when it comes to homework. It could make all the difference for someone else who is struggling.

A Mom's View of ADHD

I also have a dream...

Monday, January 25, 2010

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In honor of MLK day last week, one of Luke's story starters for writing class at school was "I have a dream..." He didn't complete it in school so he brought it home to finish (now part of his 504 Plan accommodations). He did a great job talking about a home for the homeless, food for the hungry, and a cleaner earth. His handwriting was fantastic (for Luke) and he drew a comprehensive illustration. I was so proud of him. It was also a good starter for a conversation about how the color of someone's skin doesn't mean anything -- that people who look different from us still have the same heart and the same feelings and are people just like us.

As I thought about this speech, "I have a dream...," I was reminded of an idea I have had for a while now in regards to helping ADHD children in my area. This idea is bigger than me, so it really is a dream. While I certainly don't have the means to make this dream a reality, I am hoping someday, someone with the funds and power will have this same idea.

I have a dream that there will be one treatment center for ADHD (and related disorders). A center that will encompass treatment of the mind, body and spirit. This go-to ADHD center will have the following services all in one location (everyone specializing in ADHD):
  • behavioral specialist MD
  • psychologist/psychiatrist/counselor
  • social worker to manage care and treatment
  • occupational therapy center
  • speech therapist
  • art therapy/classes
  • music therapy/classes
  • nutritionist w/cooking school
  • martial arts classes
  • yoga and meditation classes
  • tutoring
  • pharmacy
  • social skills classes
  • support group meetings
  • social events for parents and children
  • maybe even a hairdresser that has a special way with our little squirmers
  • ???
If you are like me, you spend most afternoons and evenings during the week running your children from doctor to therapist to occupational therapy, to the pharmacy, to the nutritionist, to extracurricular that are said to be good for ADHD, and you wish you had the time to do more for your child. Wouldn't this go-to center be great?

A Mom's View of ADHD

Penny Williams

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